Sunday, March 27, 2011

Improv, Roxie and Janet, oh my!

It's Sunday and I am fresh off my very first improv class. It was so much fun! I took full advantage of a groupon (as did all but one other person in the class) and we mimed, mirrored, and one-lined our way through the two hour intro class. Low and behold, many of the improv games, we play here in the Rodenbeck/McFarland household on a regular basis! Games such as "finish the story" where each person takes a few lines of a story, then passes it to the next - we do that all the time with Max and Pheobe - they love it. Phoebe and I started a new game on the plane home from Myrtle Beach that we love called "subject and verb." We give the other person two subjects and a verb and they have to tell a story using both. Of course, improv was just like that. Today, I had to go on a "rant" about Chris Brown. It was really hard, actually because halfway through, my mind went blank and I couldn't remember any of his songs! Well, I have three more classes and I can't wait to see what I get to do next - the teachers also do an improv show on Tuesdays at Lemmons - I'll try to check it out soon!

Did a lot of sleeping this weekend. I think I've finally figured out that I compeltely push myself during the week at work and on our weekend with the kids and then I'm just worn out on our weekend off. I took at nap on Saturday and one today. It was nice to not have anything to do, so I could actually have time to rest.

Our Roxie is pretty sick. She is throwing up everywhere, still peeing outside the litterbox and not eating. We took her to the vet on Saturday and they did several tests, but didn't really see anything wrong. Last month, she was diagnosed with bladder stones and we gave her a month of special food and medication and they told us yesterday that the stones were gone, so that was good news. Hopefully, she is just having a hard time recovering from the passing the stones and she will get better soon. We come home and have to check for kitty puke and pee before we walk anywhere. Its disgusting.

Two bits of good news - the Emily's kidney crew was interviewed by the Suburban Journals and that story should be out soon. More media is on the way as well, so stay tuned. I am still completely overwelmed by the response to Emily's kidney and her plight!

Secondly, my favorite musician and I will be reunited on Thursday. Yes, Janet Jackson will be performing for me in a private show at the Fox theatre. What's that? A few thousand other people are coming as well? And what's that? She doesn't remember me from the last three shows she did for me? I don't believe that - surely she remembers me, back in 1994 at her Janet concert. I bought a t-shirt - the vendor said it was a "special edition." Either way, I am so excited - my girl Amanda and I will be rocking out as much as two just over 30 year olds can rock out, when thinking "I am really excited to be at the kick-ass concert, but I hope Janet hurries up, because I have to get home and get to bed because I have to get up and go to work in the morning!" Admit it, Amanda, you know you'll be thinking it!

That's all for now - stay tuned for more info on Emily's Kidney!
Kidney love!

Friday, March 18, 2011

What a week!

Here we are...Friday! It has been a whirlwind week! I've been on spring break this week and good thing - Emily's Kidney and her crew have been on a media roller coaster. We had two interviews with KSDK and one with David Lile on KFRU in Columbia, Mo. The response to Emily's Kidney facebook and twitter pages have been overwelming. Since Mandi and Maria started the pages at the end of January, over 2200 friends have cared enough to start following us. I can't even begin to put into words how thankful I am to everyone for helping to spread the word about organ donation and my story. I look at my life over the last three years and still can't believe its been so long. When I was first put back on dialysis in November 2007, I really thought it was going to be a minor set back. I thought my dad would be a logical donor and I would have to be on dialysis for a few months, tops. Then he was rejected. Then my sister got tested (which was beyond hard for me - my baby sister donating an organ to me? No way!) and the surgery was scheduled for May 20, 2008. And then, a week before, the transplant was cancelled - my antibody level was too high. Friend after friend came forward to be tested - 12 total - and all were rejected. I call them the "Dirty Dozen."

I can't believe three years have come and gone, all the while, I go to dialysis, have my blood cleaned every Monday, Wednesday and Friday, without fail, for four hours each time. I can't drink hardly any fluids because my body can't process it. I can't eat certain types of food, like dairy, potatoes, chocolate and lots of other foods because my body just can't handle it.

They say the wait time for the national list is three to five years - so I guess I've just entered the minimum wait time. However, with my high anitbody level, I know I have much longer to wait. My best bet is to find a living donor with low antibodies. I know my kidney is out there somewhere - and my mantra is...I'm closer today than I was yesterday, right?

I am blessed to have two clever, witty, generous and gorgeous friends in Maria and Mandi who have taken to social media because they were tired of seeing me suffering. Behind my back (lol), they created twitter and facebook pages for...wait for future kidney! Yes, my future internal ogran is now tweeting from inside someone at a location yet to be determined! Using their own humor and clever kidney-isms, these lovely ladies have taken social media by storm and are doing all they can to find little ole me a kidney.

To say I am thankful is an understatement.

Since March is National Kidney Month and March 10 was World Kidney Day, we've gotten some recent media attention from our friend at KSDK, first in Dana Hendrickson and Wendy Erickson at Show Me St. Louis and then with Jeff Small, reporter. Both stories were really great and I can't thank KSDK enough! Also this week, kidney friend Emily Holtsclaw in CoMO got us on KFRU with David Lile, a great AM program. Mandi and I talked with David for a few minutes and it was a really great interview...and it was Emily H.'s birthday!

I look back on this week and the last month and can't believe how Emily's Kidney has changed my life. Yes, I was a positive person, trying to be optimistic about when my transplant would come. I feel like there is light at the end of the tunnel now - instead of just chugging along.

I can't wait to see what is in store for me and Emily's Kidney!